Why Seeing Isn’t Always Believing

I don’t know about you, but I look through Pinterest and there are days when I get so revved up about what I see that I have to stop looking at it for a few hours, or I’ll keep going back to it and get all worked up. Especially when I look at the feminism stuff or mental illness pins. And I am very much for both of those sections. But you know as well as I do that any old fool can post things without having an inkling of knowledge to back up those words. And it is that ignorance that gets to me. So, let’s jump in the time machine and I will tell you all about why.

I’m a proud Pinterst fanatic. I have over 20 thousand pins. It’s taken LARGE amounts of my time to get that far, but I consider it an invaluable resource to my life. For those of you (are there any?) who don’t know what Pinterest is, it’s kind of like a networking site for ideas. You “Pin” ideas to a “board” and save recipes, DIY projects and so many things. But it can also be used for keeping ideas together. I belong to both camps. Today, I’m going to focus on how social media (specifically Pinterest) perpetuates incorrect information about mental illnesses and disorders: namely EDs (Eating Disorders).

I doubt there are in here, but I know how this works, so just in case.

***TRIGGER WARNING*** Some symptoms, stories and elements may cause flare ups of conditions. The author does not condone or suggest any actions which may cause bodily harm.

I know that if you go into Pinterest and type in “Eating Disorders” into the search bar, you will most likely get a different result list than I will. So I’m going to do this the only way I know how: screen shots! I will caption them with WHAT I want you to pay attention to and then WHY it’s important to today’s blog. This is going to be a personal one today, and I hope that means it helps more than I rant.

  
First off, I like this. I mean, I’m not really sure why I couldn’t immediately connect to Pinterest, but I’m ultimately glad I didn’t. And it goes to show, that the moment I try to prove my point, something inevitably happens that changes my mind. Sort of. So thank you, Pinterest for being on the ball. I appreciate that.

  
 
I want you to look at the top left “hand” picture AND the one right beside it. Those two pictures I am calling into question because although you cannot sum ANY disorder up into a single picture, these only scratch the surface. ALL of these pictures do. The focus is on being skinny. But this screen shot shows my point as well. Looks can be deceiving. And the truth is, you really may not ever know who you are until you break away all of the pieces you thought you were made of.

  
 
This time, focus on the gentleman , and the woman at opposite corners. The great thing is that it highlights men having EDs too; a topic we need to focus on more! The problem with the gentleman’s picture is the same as above: it focuses on the skinny issue. And granted you could argue that that is the “basis” of eating disorders, but I would argue it is merely a facet of some of them. The problem I have with the second one actually requires more than a caption so I’ll bump down a paragraph.

Yes you do. You absolutely do decide one day that that is the course of action you are going to take. It may be subtle, like backing off, extreme dieting or eating less and less. It may be abrupt and one day you just stop eating solids, or anything at all. But you DO decide it. And it basically happens in a day. You just can’t take the pressure or the shame or the guilt and you decide you’re going to do something about it.

I was 14 when I first started dabbling with EDs. Almost a decade later, I’m not sure I’m any better.

The first thing I tried was Bulimia. I can make myself purge on demand and I enjoyed the taste of food so I thought: At least I can still taste the things I love. But the thing is, I HATE puking. I really do. And no matter how much I convinced myself that it would help, I dreaded each meal for the sole reason that I would have to throw it up. I maybe lasted in this phase a grand total of 2 weeks. Any extraneous symptoms were not entirely present. (Or had been present BEFORE onset.)

  

So I moved to Anorexia. By the “height” of my time in this disorder, I was only eating an apple a day and that is why I became a caffeine addict. I fought so hard to stay awake every day. And since I have many years worth of experience in this disorder, let me tell you some things.

  

First. While the motivation to be skinny is a big draw into this disorder, it isn’t the thing that keeps you there. You become trapped, like you cannot stop. You feel like it’s your life now and that is all there will ever be. And did I mind that my collar bone stuck out, that my ribs were exceptionally visible? I lived for those signs that I was making progress. But those are the “sexy” side effects. I’m here to tell you about the not-so-sexy ones.

I began to pass out. Sometimes at home, sometimes at school, always without knowing it. It was kind of like narcolepsy-it just happened. And on top of the literal black outs, I began to loose whole chunks of time. There are, even still, very large portions of my memory that are not clear because I didn’t feed my brain enough to make them last. On top of that, I have little hairs all around, which were not there before. You wouldn’t know it, because I take care of it, but even now, they remain. And the hair on my head falls out in great clumps, just as it did before. I missed menstrual cycles-sometimes for 6 months or more. Not because I was pregnant, but because my body couldn’t succeed in normal functions. My fingernails would constantly chip and break, but the worst thing was how weak I felt. I felt slow, my head felt too big, it was like being stuck in extreme gravity for months on end.

And the thing is, no one even noticed. I wore baggy clothes, bundled up, and tried to hide from everyone. This photo was taken of my in my junior year, I believe. I was trying to catch up on some caffeine, clearly. (I said I was a caffeine addict. And I remember this. It was during prom planning, when I had to try hardest to fit in.) The shirt I was in was a medium. 

  

I was 5 foot 9 inches (1.75 meters) tall at that point, as I am still,  and “look healthy”. But what you can’t see are the constant struggles with food, the endless exercises,  the constant state of pain. All you can see is laughter. A facade.  The me that I outwardly projected. Which is exactly what my primary care physician saw when I went in with the complaint of forgetting chunks of time and passing out. She told me that it was all menstruation related and that I needed to “focus harder”. She could have inadvertently killed me with those words, but luckily I saw a psychiatrist soon after.

And now?

That’s what everyone wants, right?  The triumphant “I survived. And now I’m better. ” story. But I don’t think that’s the story I have for you.  Not today.

I currently fall into the “obese” category of the BMI chart. And does that bother me? A lot. I stay so far away from the starvation diet that I jumped right into the other band wagon. 

  
Puts an interesting spin on things, doesn’t it? Like a big fat slap in the face. I didn’t even know there was a name for what I was doing to myself. And the thing is: I’m not so different than I was before. I spend a day eating whatever I want followed by a day of not really eating, or by a week of heavy dieting. And the people who know me know that I diet a LOT. We’re talking everything shy of weight loss pills. And the cycle repeats. And I’m almost afraid to call it what it is, because I still can’t decide if it’s a lack of willpower, self control or if it’s just lazy, “emotional” eating. With Bulimia and Anorexia, I could relate to 90% of the psychiatrist’s symptom list, but only about 80% of the list I supplied. (More with AN than B.) But I can check off every single symptom up there for BED) and if that’s not saying something, I’ll tell you what is.

I’ve had some variety of ED for HALF MY LIFE (almost-we’re short by 2 years). My hair, even though it is thick (as we discussed a couple posts ago) falls out in large clumps. My nails break often (but I try to compensate with the vitamins I take). My body still has little hairs from being anorexic, I feel sluggish and exhausted a LOT, and I cannot say that I enjoy these decisions. By being anorexic, I ruined my body. I broke who I was as a person and watched the pieces slip away. But with B.E.D., I’ve hidden any growth behind a wall of food, shame and pain trying to avoid crushing my soul into oblivion (all while sabotaging it instead). 

So all in all, what I have to say can be boiled down into two parts. First, the Pinterest issue. Not all EDs are about being skinny. I didn’t even touch on orthorexia. Not all EDs are publicized, but ALL of them need to be taken seriously.

And second, I make a public promise to myself, that I will never stop fighting for people who need it, even if they do not look like anything is wrong. Because for years the only thing people were concerned about was the physical harm I was inflicting on myself, and noone even saw the neglect and torture behind it.

So although this isn’t an update for you all, I’ve been working on this post for over three weeks, and I want everyone to know that I am getting help I don’t know the future, but I have to take back control.

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