10 Things Bipolar People DON’T Want You To Know

I can’t count the number of articles I’ve come across with the title # Things Bipolar People Want/Wish You Knew or the List Of Things People With Mental Illnesses Wish People Understood. And for the most part, they’re pretty spot on. But I want to come at it from a different angle. I’ve done my best to keep it pretty similar in format, but if you feel I got something wrong, or missed a key point, drop me a comment! (Images thanks to Google-I own nothing.)

  1. We’re scared of our symptoms too.

bp2There’s nothing quite like the dive between (hypo)mania and depression when you feel like you can see the world crumbling around you. Or the emptiness that makes you feel like a dead (wo)man walking-no cares, no love, nothing. Or the darkest parts of depression when it hurts to cry because you’re trying not to wake anyone, so you silent sob but then you realize you aren’t breathing either and your chest is on fire, but it also feels like you’ve got a ton of bricks on top of you. You wonder if it’s possible to be so sad that you die from it. You walk around with the stress of what could happen if you have a manic episode. The way you lock up your credit cards, carry around only a limited amount of cash because you know you can’t stop yourself from spending everything you have. The way you stay home because you know you’re bound to get into a bad situation because you’ve been manic for a few days and now you’re bored. No matter how “together” we feel we’ve got it, there are days when we are genuinely concerned that

2. We’ve given up hope for ourselves more than you

We know that sometimes we’re a hot mess. Hearing you say “I’m done.” when we have a bad day (or too many in a row), or watching you go for a drive because you “can’t handle” us at the moment just reminds us that we’re alone. And as many times as you’ve grown tired of us, we’ve done that twice as much with ourselves. bp7 If we trust you enough to open up, it’s because we know that we’re eventually going to fail ourselves and we need you to pick up the pieces. It’s not fair of us to smother you in our problems, but if we could figure out how to not make them problems, or how to deal with them on our own, we wouldn’t need help so much. In the end, when the words “I suck” are said, it’s our inner demons speaking and we need you to tell us why we shouldn’t believe them again.

3. We genuinely don’t need a reason to be upset (in any mood) and it makes us trust you less when you yell at us that we DO need a reason.

If we knew why we felt the way we did, we could fix it. We have a mood disorder, not an analysis-of-the-situation disorder. If we’re showing you we have a problem, don’t force us to talk about it before we’re ready. It just makes it worse and we’ll lie about why we’re upset because we just want you to be happy that there is a reason-even if there isn’t. If we have to lie to you, then we don’t respect you as much, because we already fell like we’re lying to ourselves. And lying to anyone else is just a repeat of what we’ve wanted to get away from.

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4. We feel like actors. A Lot. And no, we don’t want to “remove our mask”.

bp1Feeling (hypo)manic? Better find a reason for being able to put in all the extra work, being extra chatty, being extra social. Feeling depressed? Better find a reason to feel sad. Or, better find a way to hide it behind the words “tired”, “sick”, and “allergies”. No one think to question the high-functioning worker or student, especially if it’s peak work time-end of the year sales, there’s a special on at work, it’s final’s season. We blame it on too much caffeine, the hyper form of exhaustion, being really excited for a goal or even wanting to get something done so that you can do something else (the key “give aways” here are goal orientation and chaos). Everyone avoids the depressed, especially if it’s the grey-faced, bags-under-the-eyes, slow-as-molasses individuals who seem to act like that for days. Everyone asks about the first day- “what’s wrong”, “need anything” and so on. But even the answers to those are lies. “Just tired”, “stressed”, “coming down with something”. It’s easier to just go on with the lies than it is to explain everything to every person. Because inevitably we’ll get the “avoidance” treatment ALL the time.

5. Looking at other, more successful people with Bipolar Disorder makes us feel like a disaster.

It is both a blessing and a curse to see the people who have come before (or are presently) and were (are) successful AND bipolar. Van Gogh. Lovato. Van Damme. Cobain. Churchill. Nightingale. Sinatra.Woolf. Artists, Singers, Actors, Leaders and more have graced history with their talents and their diagnoses, some of them succumbing to their disorders, some becoming great advocates. bp6 Not everyone with Bipolar Disorder is going to go on and be famous and we KNOW that. But it hurts quite a lot that some of the people who were most successful at their craft had it and we share a condition and aren’t sharing in the capabilities. It’s easy for us to start a painting or sculpture, musical instrument, novel, poem, whatever and then destroy it because we listen to the voice that says “you’ll never get noticed.” While we’re happy for the successful people with bipolar disorder, we want to be like them too and that usually doesn’t happen.

6. We’re absolutely normal-just in a more spectacular capacity.

successsWhether we want to admit it or not, we’re completely normal. We eat, drink, breathe and exist the same as anyone else. But we do so in a broader spectrum. We experience great sorrow at the loss of a friend, or freedom, or innocence. We experience great anger at perceived injustices, at inequality. We experience pure joy at the birth of our best friend’s first child, at the sight of a rainbow or a thunderstorm, at the realization that we succeeded at a task we’d never tried before. Where other people may feel confused, we feel it more. Where others may feel concern, we feel the weight of the world. It’s not about the Hollywood stereotype of the best-friend-turned-serial-killer. We have jobs that we fight desperately to keep, we have friends and families and we go to school. Just the same as any body else. We just live it more.

7. We become specialists in our diagnoses and we don’t appreciate being compared to your “crazy aunt” or your “moody neighbor”.

It’s nice when people have had genuine contact or a relationship with someone who actually had bipolar disorder. It’s nice to know that if you have an episode, you can talk to them and they can help you through it. It isn’t AT ALL nice when people pretend they understand. We aren’t like your “crazy aunt” who threw your uncle’s things out of the house because he broke her favorite plate. And we aren’t like your “moody neighbor” who doesn’t smile when you say good morning and cackles over his cup of black coffee at a kid who falls off their bike. We just experience life in a deeper spectrum (see number 6). bp4 And while we’re on the topic, STOP calling the weather bipolar. That’s offensive to the people who actually have bipolar and that’s altogether not hilarious. We get it, you have problems with the weather. Bipolar disorder has the capacity to destroy our lives. Pack a sweater and an umbrella. You’ll be fine.

8. We could write a dissertation on suicide and the types of suicidal tendencies.

bp9Everyone, just about, is familiar with the concept of suicide, and there may even be people who have experience with it on a more personal basis. A person with bipolar is exceptionally likely to thought about, if not tried suicide. But there’s more to it than being depressed and then dying. There’s plenty more motives than people want to discuss. And then there are the latent forms of suicidal tendencies. Because most people are familiar with the “I don’t want to live anymore” version. Not as many people think about the “I want to sleep and not wake up” kind or the “I wish I could just cease to be” kinds. We could write novels about this subject in particular and probably come pretty close to making it the encyclopedia of suicidal tendencies and things you never thought to associate with them.

9. We go between being really proud of who we are and feeling like a giant mistake

bp3.jpgWe know it’s a hassle. But some days we wake up feeling like we run the world. And those days are so few and far between that we run with them in the farthest possible manner. Because soon enough, we know there will come a day when we just can’t seem to do anything right. It isn’t that the days when we feel epic are the truth and the other days are lies. It’s more fluid, more layered than that. We are experts at living in all the times (past, present and future). So when we say “We rock” it is at that moment, we feel we have reached a milestone of success which can be seen at that moment. When we say “we suck” it is because at that moment all we can see are the failures. It doesn’t mean we’re completely failures or completely successes, it’s just what looks more prevalent at that particular moment.

10. We don’t know how to live our lives.

The sentence that seems to pop up the most lately is that of “adulting is hard”. There are even renditions which say “I’m done adulting. If you want me, I’ll be in my pillow fort with my coloring book.” At some point, we have come to realize that we have absolutely no idea what we’re doing. We can find things which help us manage our symptoms safely and in a positive way. We can avoid triggers. We can accept only what we can reasonably handle. But in the end, we don’t know what we’re doing. There is no manual for living with bipolar disorder. And even if there was, not everyone is the same, so it might not work for us. Funnily enough though, not too many people (with AND without the diagnosis) know how to live their lives. Turns out, people with bipolar disorder just might be the firs tot admit the way that everyone is feeling. No one knows what’s going on. And that’s part of the fun.

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It Got To Me.

I’ve got a blog scheduled for tomorrow (first time I’ve scheduled one!) that goes into detail about what I will speak on tonight. Tonight I am blogging as a mental purge. As usual, you can ignore it, or you can read it for what it is-me stumbling around, searching for answers. Today, though, I’m going to try something a little different. I present to you:

A Seed

I passed by the garden of the no longer living, their flowers an ashen pillared stone. I hear their whispers call to me, the wind bringing the weepings of those passed on. Regret thickens the air around me, my breath turning to crystals in my chest. A hand reaches out for me, the keeper of the gate claims I have no right to pass through. “Please,” I whisper, “I have already died while I lived. The feelings claimed me, the bondage of my emotions pulled me through the depths and I ceased to be years ago.” He eyed me wearily and nodded, his expression relaxing.

“It is so for many.” He sighed, the sweet tobacco smoke caressing my cheek. My path opened and I could see a single plot of earth undisturbed. My feet glided, the pain in my heart weighing down my steps, until I could barely move them. I reached my reservation, the tension in my body forcing my gaze skyward. I lifted my hands higher, the heavens leaning into my touch. I felt the sorrows of the years form rivulets on my cheeks, washing away the body I had outgrown so many years ago.

“Why?” My heart roared. “Why was I alone for so long? Lost in the ocean, I perished amongst the apathetic and the unconcerned. My blood was spilled for far too long, the agony never being relieved.” The sky above my split, lifting my chin as high as it would go.

“You had to enter oblivion to be made new.”The rumblings of sadness reached my ears just before the cleansing rain. With the last of my awareness, I watched the scars on my wrist become barky ridges. I closed my eyes at last, the sweet peace overcoming me as I’d begged it to for years.

What I had hoped for in death was given to me in life. The world which sought to bury me alive didn’t know that it was that very thing required to bring about the greatest transformation.

tree woman.jpg

(Image Credit: Willow, at Wallpaper Up)

The story came before I found the photo.

Leave Out All The Rest

I so frequently get to talk about depression, and how it affects my life, but I so rarely get to talk about mania. It’s a confusing time in my life, and I really have no life-altering things to say about it. But I want to give a peak into it anyway, for the sake of the story.

I’ve only had I’d say one episode of actual mania-the kind that keeps me up for weeks (not days!) without caffeine, the trouble focusing, the jittery kind of organic buzz that makes me need to multitask incomprehensibly. Everything else has been hypo-mania. And that is in no way less confusing, it is simply not as…devastatingly so. Welcome to today.

mvh

I can never tell when it’s going to hit. I always know when it’s going to end.

I pick up little indicators along the way. Being chatty, staying up late, needing to be artistic-like an actual need that consumes me, mind racing. And by the time all of these are present, chances are I’ll also exhibit the one last symptom that I have to fight to control: money spending.

I’m not a gambler-I’m really bad at it and I don’t necessarily like it. I don’t dislike it either. I just happen to like “getting” stuff when I spend money. It might be a couple of things here, some bits and bobs, herbs, trinkets. It really depends on my mood. All that actually matters is getting the mail. That’s my favorite part. It’s like a birthday that I give myself.

I didn’t experience the spending thing until rather recently-within the last two or three years. Spending money is normally a source of anxiety for me. I don’t like watching my bank account lose numbers. But every so often I go out and buy enough stuff that it creates a dent. And then I work my butt off to make sure that it left no lasting mark on my budget, my bills or anything else.

The first time it happened, I spent over $200 on trading cards. I told myself that I needed a hobby. So I bought cards (which had to be shipped to me) and then went to the store to buy the card protectors and a binder. My dad and I had a card collection since I was little, and I finally organized those too! It’s now one of my prized possessions.

prize

(This is my most prized card.)

The next time, I think it was herbs, oils and protective jewelry. I bought evil-eye stuff, relaxation stuff and I think I got some miscellaneous spiritual jewelry. Then came candles and soap. I bought the kind with jewelry in it. Double presents! Each time I knew I should put that money towards something more necessary-like saving for grad school, books for next semester or some clothes that actually fit. But those things aren’t fun-they’re just necessary. And necessary feels like a chore sometimes. Not manic-completely ordinary and therefore out of the question.

Thankfully, some small part of my brain still functions on a normal basis and I stop myself before I completely ruin my life. It’s always a fear though. But this time around, I am prepared. I have a million days worth of craft stuff, the book about body positivity and safety and I have hundreds of other ideas that might help. I think I’ll be okay.

I hate being on the “high”. My mind races so fast with such great ideas that I wish I could slow it down for just long enough to write everything down and complete everything. I start dozens of projects and I intend to finish them all, but they only reach partial completion and end up in the “I might get to this next time” pile. I fly around ideas so fast that it almost hurts.Because the only way to make it stop is to drown it out completely. When I’m up, it’s music 24/7-so that I can get some sleep, can moderate my activities. And I find it so weird that I have to stop myself in order to function.

But in all, some of the best ideas I’ve ever had have come from times like these. One Christmas/Yule season I made quilts for ALL of my in-laws (I think it came out to about 15 full sized quilts-the pictures were lost when my computer crashed), there was one time that I wrote 75000 words for a book in about 20 days, and of course, there are other not-so-grandiose things like finishing entire TV series in a couple days, reading whole sagas without stopping and the like.

late-night-reading_opt

As it would turn out, the days that I feel the least bit like me are the days when I act mostly in my own self interest. I set out to change the way I see the world. I craft things to make the dark days seem better, I buy things in preparation for the crappy days when I need something to make me smile. I set myself up opportunities to do great things and chug along so that when the bad days come (and they most certainly do) I can remind myself that I can do it.

So today, I send my children’s book out to agents, I powerhouse through my homework, the housework and then, if I feel really motivated, I may even sculpt a little. Because to lose this momentum will be a tragic, bizarre thing and I’m not ready to just yet.

Van Gogh’s Birthday

This day is such a beautiful day, each and every year. One of my favorite artists (second only to Da Vinci) was born on this day. He lived his life in such a way that it is remembered even today. Although not very rich, famous, or even renowned during his life, his work lives on today as invaluable.

  
   

                                                                  
(These are two of my favorite pieces of Van Gogh’s. They’re just fabulous.)

On top of that, today is World Bipolar Day. It was so chosen to be on this day BECAUSE it is Vincent Van Gogh’s birthday. You see, he was posthumously (after he was already deceased) diagnosed with bipolar disorder, which led him to commit suicide. Today, so many people are sharing their stories, promoting the end of stigmas and several hashtags, among which are #WeAreMoreThanADiagnosis and #WeAreNotAlone

                     

I’m in the middle of a couple other blogs, which are tandemly connected to this topic today about mania and depression, but I want to bring up one key point that resonates throughout. Today isn’t a day for words, it’s a day for pictures.

                                                   

                               

  
  

  

                                                 

A Letter

Dear Senator Sanders,

         You do not know me, but I am a young Democratic voter from a very small town in Ohio. You’ve probably never heard of it, but it was named after a Polish officer who fought in our revolution. In that tiny little spot, there are no stop lights, and plenty of dirt roads. It is a place where children can play freely, cut off from the rest of the word, or so it can seem. I grew up there, and it will always be home to me, full of the love and support that I am thankful to have had.

         I’ve been privileged to have had some wonderful friends, all of whom helped me grow into the outspoken, passionate woman I am today. And part of that stems from having a deep love of people who are different from myself. I deeply enjoy looking into other cultures, ensuring that I have the best, most thorough information available, so that I can make that small town proud of the ways in which I impact my world. As an anthropology student, research into cultures and attitudes are kind of a requirement. So I took the time to do a little research on you, Mr. Sanders, and here is what I found out.

         You are a man of many skills: carpentry, film and legislation among them. You are devoted to your family, and all that you see morally astute. But do you know what I did not see, or at least, not on your website? I did not see a medical degree. And so it troubles me deeply that you went out of your way to say the following at the debate in Flint, Michigan:

“We are, if elected president, going to invest a lot of money into mental health. And when you watch these Republican debates, you know why we need to address the mental health.”

         You see, the media may have found that sound bite worthy of a chuckle, Secretary Clinton did as well, but for someone who works so hard at promoting equality amongst peoples, you have let down a very large, very important community. You may have made an offhanded comment about the opposing party, but you neglected to consider that the members of the mentally ill community may not have appreciated you including the Republican candidates into that group simply because some of the outrageous things which have come out of their mouths.

         I have been a proud advocate of mental health awareness, of mental illness equality and of breaking down stigmas associated with mental illnesses. But more than that, I am a member of that community that you so brazenly mocked. Some of the phrases you used last night were “lunatic”, “crazy person” and of course, the quote which I have mentioned above. You see, while it may be easy to openly criticize actions such as those of Mr. Trump mocking a physically disabled person, it is not as socially acceptable to openly discuss ways in which mental illnesses need to be treated with the same respect. 

         So here I am, Senator Sanders, a young woman from Ohio, asking you to consider the fact that while the words you speak may be coming from a well-intended place, you are furthering the stigmas and stereotypes which have plagued a branch of health and wellness for far too long. Instead of using the actions of the opposing party to get a few laughs, why don’t you focus on ways in which you will help the mental health community facilitate our own well-being in the face of misunderstanding and under-education. Perhaps then, you would be able to see why making jokes about mental health isn’t funny-it’s just plain rude.

         Thank you for your time.

Best,

Michelle Brewer-Bunnell

A Concerned Citizen

All Eyes on Me

I was watching the debate last night (are you really that surprised?) and I noticed a very horrifying trend. I have watched almost all of the debates (I think I missed an early democrat one) and I have never been more appalled at the display I have witnessed this past week. I knew debates were a sheer and utter debacle, having witnessed 3 that I clearly remember. I wasn’t always aware of what the issues were (the first one I remember: I was 12) but I remember the ads and the ways that the candidates used low-ball tricks and schemes. I was a senior in high school during the campaign season for President Obama’s second term and although I had taken government, I was still only vaguely aware of “what it all meant” but again, I remember the attack ads and smear campaigns. So why was I so surprised this week?

I have decided that I will throw in a candidate from both parties who exemplify my concern for the direction of this election. Nominees for Ring Leader of the Circus of Politics are: Donald Trump (R) and Bernie Sanders (D). Now, I do not know these men, apart from what I can watch in the debates, but the issue I have with them this week is the wording that they chose to use during their discussions. I’ll start with Mr. Trump, because I have a feeling that will be a much shorter rant.

“I guarantee you, there’s no problem.” By now, I’m sure you all have seen memes or the debate itself where Mr. Trump inadvertently mentions his genetalia. Why is that an issue? Because he could be representing our country (or at the very least, for some of my readers, a country which affects yours) and he’s making penis jokes? At a presidential debate? On live TV? Without taking a hit in his numbers? In fact, his numbers literally just keep going up, apparently. Literally anything that comes out of his mouth is like a voter magnet. And that’s concerning on so many levels. I can only hope that if he in fact does become POTUS, that he will tone down his language and will be a morally upstanding citizen. Until then, I will continue to be horrified at the level of bigotry and racism and sheer ignorance spewing from that whole campaign.

Now on to Mr. Sanders. While I have not held many strong opinions about the democratic side, I must say, there were comments made last night that frustrated me to no end. And that’s the reason I decided to post this post today. It started out with Mr. Sanders throwing around the words “crazy” and “lunatic” as though they were common vernacular (and you could argue that they are) but the quote of the night that I bring forth is this:

“We are, if elected president, going to invest a lot of money into mental health. And when you watch these Republican debates, you know why we need to address the mental health.”

What. The. Heck. People give Donald Trump a lot of grief (and rightly so) for mocking an individual with a physical disability. But I just googled the quote (for accuracy’s sake) and people are laughing about it. People are making light of it. Are you kidding me?! Call me a little touchy on the subject, but since when did mental health become a laughing matter? And I plan on being a part of the government (judicial branch, mind you) some day, and I take great pride in being able-bodied with a beautifully divergent mind. In fact, that may be my tag line for election. If there were candidates with mental illnesses, can you imagine the uproar? How offensive that is? Because I can. I’m an individual who will be very affected by the changes in president and I am offended. I will not be taking any obnoxious steps to fix it (I’m not going to sue you, Mr. Sanders) but here’s what I will do. I will post a letter, detailing what it is that makes that quote so awful. I will post it here, and I will hope that maybe it reaches those who will understand my words to be true. And maybe then there will be some progress. Because one man’s ignorance is more than enough for me, but two men’s ignorance is something altogether too much.

Why Seeing Isn’t Always Believing

I don’t know about you, but I look through Pinterest and there are days when I get so revved up about what I see that I have to stop looking at it for a few hours, or I’ll keep going back to it and get all worked up. Especially when I look at the feminism stuff or mental illness pins. And I am very much for both of those sections. But you know as well as I do that any old fool can post things without having an inkling of knowledge to back up those words. And it is that ignorance that gets to me. So, let’s jump in the time machine and I will tell you all about why.

I’m a proud Pinterst fanatic. I have over 20 thousand pins. It’s taken LARGE amounts of my time to get that far, but I consider it an invaluable resource to my life. For those of you (are there any?) who don’t know what Pinterest is, it’s kind of like a networking site for ideas. You “Pin” ideas to a “board” and save recipes, DIY projects and so many things. But it can also be used for keeping ideas together. I belong to both camps. Today, I’m going to focus on how social media (specifically Pinterest) perpetuates incorrect information about mental illnesses and disorders: namely EDs (Eating Disorders).

I doubt there are in here, but I know how this works, so just in case.

***TRIGGER WARNING*** Some symptoms, stories and elements may cause flare ups of conditions. The author does not condone or suggest any actions which may cause bodily harm.

I know that if you go into Pinterest and type in “Eating Disorders” into the search bar, you will most likely get a different result list than I will. So I’m going to do this the only way I know how: screen shots! I will caption them with WHAT I want you to pay attention to and then WHY it’s important to today’s blog. This is going to be a personal one today, and I hope that means it helps more than I rant.

  
First off, I like this. I mean, I’m not really sure why I couldn’t immediately connect to Pinterest, but I’m ultimately glad I didn’t. And it goes to show, that the moment I try to prove my point, something inevitably happens that changes my mind. Sort of. So thank you, Pinterest for being on the ball. I appreciate that.

  
 
I want you to look at the top left “hand” picture AND the one right beside it. Those two pictures I am calling into question because although you cannot sum ANY disorder up into a single picture, these only scratch the surface. ALL of these pictures do. The focus is on being skinny. But this screen shot shows my point as well. Looks can be deceiving. And the truth is, you really may not ever know who you are until you break away all of the pieces you thought you were made of.

  
 
This time, focus on the gentleman , and the woman at opposite corners. The great thing is that it highlights men having EDs too; a topic we need to focus on more! The problem with the gentleman’s picture is the same as above: it focuses on the skinny issue. And granted you could argue that that is the “basis” of eating disorders, but I would argue it is merely a facet of some of them. The problem I have with the second one actually requires more than a caption so I’ll bump down a paragraph.

Yes you do. You absolutely do decide one day that that is the course of action you are going to take. It may be subtle, like backing off, extreme dieting or eating less and less. It may be abrupt and one day you just stop eating solids, or anything at all. But you DO decide it. And it basically happens in a day. You just can’t take the pressure or the shame or the guilt and you decide you’re going to do something about it.

I was 14 when I first started dabbling with EDs. Almost a decade later, I’m not sure I’m any better.

The first thing I tried was Bulimia. I can make myself purge on demand and I enjoyed the taste of food so I thought: At least I can still taste the things I love. But the thing is, I HATE puking. I really do. And no matter how much I convinced myself that it would help, I dreaded each meal for the sole reason that I would have to throw it up. I maybe lasted in this phase a grand total of 2 weeks. Any extraneous symptoms were not entirely present. (Or had been present BEFORE onset.)

  

So I moved to Anorexia. By the “height” of my time in this disorder, I was only eating an apple a day and that is why I became a caffeine addict. I fought so hard to stay awake every day. And since I have many years worth of experience in this disorder, let me tell you some things.

  

First. While the motivation to be skinny is a big draw into this disorder, it isn’t the thing that keeps you there. You become trapped, like you cannot stop. You feel like it’s your life now and that is all there will ever be. And did I mind that my collar bone stuck out, that my ribs were exceptionally visible? I lived for those signs that I was making progress. But those are the “sexy” side effects. I’m here to tell you about the not-so-sexy ones.

I began to pass out. Sometimes at home, sometimes at school, always without knowing it. It was kind of like narcolepsy-it just happened. And on top of the literal black outs, I began to loose whole chunks of time. There are, even still, very large portions of my memory that are not clear because I didn’t feed my brain enough to make them last. On top of that, I have little hairs all around, which were not there before. You wouldn’t know it, because I take care of it, but even now, they remain. And the hair on my head falls out in great clumps, just as it did before. I missed menstrual cycles-sometimes for 6 months or more. Not because I was pregnant, but because my body couldn’t succeed in normal functions. My fingernails would constantly chip and break, but the worst thing was how weak I felt. I felt slow, my head felt too big, it was like being stuck in extreme gravity for months on end.

And the thing is, no one even noticed. I wore baggy clothes, bundled up, and tried to hide from everyone. This photo was taken of my in my junior year, I believe. I was trying to catch up on some caffeine, clearly. (I said I was a caffeine addict. And I remember this. It was during prom planning, when I had to try hardest to fit in.) The shirt I was in was a medium. 

  

I was 5 foot 9 inches (1.75 meters) tall at that point, as I am still,  and “look healthy”. But what you can’t see are the constant struggles with food, the endless exercises,  the constant state of pain. All you can see is laughter. A facade.  The me that I outwardly projected. Which is exactly what my primary care physician saw when I went in with the complaint of forgetting chunks of time and passing out. She told me that it was all menstruation related and that I needed to “focus harder”. She could have inadvertently killed me with those words, but luckily I saw a psychiatrist soon after.

And now?

That’s what everyone wants, right?  The triumphant “I survived. And now I’m better. ” story. But I don’t think that’s the story I have for you.  Not today.

I currently fall into the “obese” category of the BMI chart. And does that bother me? A lot. I stay so far away from the starvation diet that I jumped right into the other band wagon. 

  
Puts an interesting spin on things, doesn’t it? Like a big fat slap in the face. I didn’t even know there was a name for what I was doing to myself. And the thing is: I’m not so different than I was before. I spend a day eating whatever I want followed by a day of not really eating, or by a week of heavy dieting. And the people who know me know that I diet a LOT. We’re talking everything shy of weight loss pills. And the cycle repeats. And I’m almost afraid to call it what it is, because I still can’t decide if it’s a lack of willpower, self control or if it’s just lazy, “emotional” eating. With Bulimia and Anorexia, I could relate to 90% of the psychiatrist’s symptom list, but only about 80% of the list I supplied. (More with AN than B.) But I can check off every single symptom up there for BED) and if that’s not saying something, I’ll tell you what is.

I’ve had some variety of ED for HALF MY LIFE (almost-we’re short by 2 years). My hair, even though it is thick (as we discussed a couple posts ago) falls out in large clumps. My nails break often (but I try to compensate with the vitamins I take). My body still has little hairs from being anorexic, I feel sluggish and exhausted a LOT, and I cannot say that I enjoy these decisions. By being anorexic, I ruined my body. I broke who I was as a person and watched the pieces slip away. But with B.E.D., I’ve hidden any growth behind a wall of food, shame and pain trying to avoid crushing my soul into oblivion (all while sabotaging it instead). 

So all in all, what I have to say can be boiled down into two parts. First, the Pinterest issue. Not all EDs are about being skinny. I didn’t even touch on orthorexia. Not all EDs are publicized, but ALL of them need to be taken seriously.

And second, I make a public promise to myself, that I will never stop fighting for people who need it, even if they do not look like anything is wrong. Because for years the only thing people were concerned about was the physical harm I was inflicting on myself, and noone even saw the neglect and torture behind it.

So although this isn’t an update for you all, I’ve been working on this post for over three weeks, and I want everyone to know that I am getting help I don’t know the future, but I have to take back control.